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Downs

Downs Author David Wright
ISBN-10 9780191619786
Release 2011-08-25
Pages 256
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For 150 years, Down's Syndrome has constituted the archetypal mental disability, easily recognisable by distinct facial anomalies and physical stigmata. In a narrow medical sense, Down's syndrome is a common disorder caused by the presence of all or part of an extra 21st chromosome. It is named after John Langdon Down, the British asylum medical superintendent who described the syndrome as Mongolism in a series of lectures in 1866. In 1959, the disorder was identified as a chromosome 21 trisomy by the French paediatrician and geneticist Jérôme Lejeune and has since been known as Down's Syndrome (in the English-speaking world) or Trisomy 21 (in many European countries). But children and adults born with this chromosomal abnormality have an important collective history beyond their evident importance to the history of medical science. David Wright, a Professor in the History of Medicine at McMaster University, looks at the care and treatment of Down's sufferers - described for much of history as 'idiots', - from Medieval Europe to the present day. The discovery of the genetic basis of the condition and the profound changes in attitudes, care, and early identification of Down's in the genetic era, reflects the fascinating medical and social history of the disorder.



Sick from Freedom

Sick from Freedom Author Jim Downs
ISBN-10 9780199908783
Release 2012-05-01
Pages 280
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Bondspeople who fled from slavery during and after the Civil War did not expect that their flight toward freedom would lead to sickness, disease, suffering, and death. But the war produced the largest biological crisis of the nineteenth century, and as historian Jim Downs reveals in this groundbreaking volume, it had deadly consequences for hundreds of thousands of freed people. In Sick from Freedom, Downs recovers the untold story of one of the bitterest ironies in American history--that the emancipation of the slaves, seen as one of the great turning points in U.S. history, had devastating consequences for innumerable freed people. Drawing on massive new research into the records of the Medical Division of the Freedmen's Bureau-a nascent national health system that cared for more than one million freed slaves-he shows how the collapse of the plantation economy released a plague of lethal diseases. With emancipation, African Americans seized the chance to move, migrating as never before. But in their journey to freedom, they also encountered yellow fever, smallpox, cholera, dysentery, malnutrition, and exposure. To address this crisis, the Medical Division hired more than 120 physicians, establishing some forty underfinanced and understaffed hospitals scattered throughout the South, largely in response to medical emergencies. Downs shows that the goal of the Medical Division was to promote a healthy workforce, an aim which often excluded a wide range of freedpeople, including women, the elderly, the physically disabled, and children. Downs concludes by tracing how the Reconstruction policy was then implemented in the American West, where it was disastrously applied to Native Americans. The widespread medical calamity sparked by emancipation is an overlooked episode of the Civil War and its aftermath, poignantly revealed in Sick from Freedom.



Raising Henry

Raising Henry Author Rachel Adams
ISBN-10 0300198914
Release 2014-09-28
Pages 272
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Rachel Adams' life had always gone according to plan. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome. In this book, she chronicles the first three years of Henry's life and her own transformative experience of becoming the mother of a disabled child.



Angel Unaware

Angel Unaware Author Dale Evans Rogers
ISBN-10 9780800759315
Release 2004-02-01
Pages 96
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The story that changed the lives of millions offers help and hope to those who have suffered the loss of a loved one.



Bite Me

Bite Me Author Ally Hilfiger
ISBN-10 9781455567072
Release 2016-05-10
Pages 320
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Ally was at a breaking point when she woke up in a psych ward at the age of eighteen. She couldn't put a sentence together, let alone take a shower, eat a meal, or pick up a phone. What had gone wrong? In recent years, she had produced a feature film, a popular reality show for a major network, and had acted in an off-Broadway play. But now, Ally was pushed to a psychotic break after struggling since she was seven years old with physical symptoms that no doctor could explain; everything from joint pain, to night sweats, memory loss, nausea, and brain fog. A doctor in the psych ward was finally able to give her the answers her and her family had desperately been searching for, and the diagnosis that all the previous doctors had missed. She learned that she had Lyme disease-and finally had a breakthrough. What she didn't know was that this diagnosis would lead her down some of the most excruciating years of her life before beginning her journey to recovery from eleven years of misdiagnosis and physical pain. She would need to find her courage to heal physically, mentally, and emotionally, and become the survivor she is today. Set against the backdrop of the fast-paced fashion and entertainment industries, BITE ME shares the heartbreaking and hilarious stories that moved Ally forward on her journey from sickness to health. Its themes will be familiar to more than 300,000 Americans diagnosed with Lyme disease each year, many of whom, like Ally, wondered for years what was wrong with them. BITE ME offers readers hope and ideas for how one can transition from victim to survivor, and shares the spiritual principles and actions that have contributed to her wholeness as a human, mother, and international spokesperson against Lyme disease.



Down s Syndrome The Biography

Down s Syndrome   The Biography Author Chris Nancollas
ISBN-10 9780232529692
Release 2012-05-04
Pages 143
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The first ever general trade biography of Down's Syndrome, tracing the history of the condition within the context of human civilization, and societal attitudes towards otherness, learning disability and mental illness.



Turtles All the Way Down

Turtles All the Way Down Author John Green
ISBN-10 9780525555353
Release 2017-10-10
Pages 304
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“A wrenching and revelatory novel.” – The New York Times “Green finds the language to describe the indescribable. . . . A must-read for those struggling with mental illness, or for their friends and family.” —San Francisco Chronicle #1 New York Times Bestseller • #1 Wall Street Journal Bestseller • #1 International Bestseller • USA Today Bestseller It’s quite rare to find someone who sees the same world you see. Sixteen-year-old Aza never intended to pursue the mystery of fugitive billionaire Russell Pickett, but there’s a hundred-thousand-dollar reward at stake and her Best and Most Fearless Friend, Daisy, is eager to investigate. So together, they navigate the short distance and broad divides that separate them from Russell Pickett’s son, Davis. Aza is trying. She is trying to be a good daughter, a good friend, a good student, and maybe even a good detective, while also living within the ever-tightening spiral of her own thoughts. In his long-awaited return, John Green, the acclaimed, award-winning author of Looking for Alaska and The Fault in Our Stars, shares Aza’s story with shattering, unflinching clarity in this brilliant novel of love, resilience, and the power of lifelong friendship.



The Spirit Catches You and You Fall Down

The Spirit Catches You and You Fall Down Author Anne Fadiman
ISBN-10 9780374533403
Release 2012-04-24
Pages 368
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A study in the collision between Western medicine and the beliefs of a traditional culture focuses on a hospitalized child of Laotian immigrants whose belief that illness is a spiritual matter comes into conflict with doctors' methods.



Thalassaemia The Biography

Thalassaemia  The Biography Author David Weatherall
ISBN-10 9780199565603
Release 2010-08-26
Pages 247
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Presents a history of thalassemia, a genetic disorder in which the body destroys abnormally-shaped hemoglobin cells at a rate that leads to anemia.



Children s needs parenting capacity

Children s needs   parenting capacity Author Hedy Cleaver
ISBN-10 0117063657
Release 2011-10-12
Pages 273
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This second edition of "Children's needs - parenting capacity" updates the original exploration of the research literature in the light of legal and policy changes in England and findings from more recent national and international research. The edition has also been expanded to cover parental learning disabilities and how it may impact on parenting and children's health and development. The findings show that these parenting issues affect children differently depending on their age and individual circumstances. While some children grow up apparently unscathed, others exhibit emotional and behavioural disorders. This knowledge can inform practitioners undertaking assessments of the needs of children and their families and effective service responses. This publication is essential reading for practitioners, managers and policy makers concerned with improving the outcomes for children and families who are experiencing such problems.



Loving Andrew

Loving Andrew Author Romy Wyllie
ISBN-10 1478298340
Release 2012-10-01
Pages 306
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"A mother recounts how the birth of Andrew with Down syndrome, and the loss to cancer of a second baby, start a family's journey through the maze of parenthood. With the support of his loving family, Andrew mastered the skills of life and became a contributing member of society." --



A Disability History of the United States

A Disability History of the United States Author Kim E. Nielsen
ISBN-10 9780807022030
Release 2012-10-02
Pages 272
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The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.



Doctors

Doctors Author Sherwin B. Nuland
ISBN-10 9780307807892
Release 2011-10-19
Pages 544
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From the author of How We Die, the extraordinary story of the development of modern medicine, told through the lives of the physician-scientists who paved the way. How does medical science advance? Popular historians would have us believe that a few heroic individuals, possessing superhuman talents, lead an unselfish quest to better the human condition. But as renowned Yale surgeon and medical historian Sherwin B. Nuland shows in this brilliant collection of linked life portraits, the theory bears little resemblance to the truth. Through the centuries, the men and women who have shaped the world of medicine have been not only very human, but also very much the products of their own times and places. Presenting compelling studies of great medical innovators and pioneers, Doctors gives us a fascinating history of modern medicine. Ranging from the legendary Father of Medicine, Hippocrates, to Andreas Vesalius, whose Renaissance masterwork on anatomy offered invaluable new insight into the human body, to Helen Taussig, founder of pediatric cardiology and co-inventor of the original "blue baby" operation, here is a volume filled with the spirit of ideas and the thrill of discovery.



Expecting Adam

Expecting Adam Author Martha Nibley Beck
ISBN-10 9780307719645
Release 2011
Pages 355
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Describes how a mother struggled to cope when her unborn second child, Adam, was diagnosed with Down syndrome, her decision to keep her son, and his magical influence on her life.



Freak the Mighty

Freak the Mighty Author Rodman Philbrick
ISBN-10 9781409591054
Release 2015-04-01
Pages 208
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Max is used to being called Stupid. And he is used to everyone being scared of him. On account of his size and looking like his dad. Kevin is used to being called Dwarf. And he is used to everyone laughing at him. On account of his size and being some cripple kid. But Greatness comes in all sizes, and together Max and Kevin become Freak the Mighty and walk high above the world. "This tale of the underdog is a truly moving modern classic – read it NOW" - tbk Magazine



Definition of Serious and Complex Medical Conditions

Definition of Serious and Complex Medical Conditions Author Institute of Medicine
ISBN-10 9780309172608
Release 1999-10-19
Pages 128
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In response to a request by the Health Care Financing Administration (HCFA), the Institute of Medicine proposed a study to examine definitions of serious or complex medical conditions and related issues. A seven-member committee was appointed to address these issues. Throughout the course of this study, the committee has been aware of the fact that the topic addressed by this report concerns one of the most critical issues confronting HCFA, health care plans and providers, and patients today. The Medicare+Choice regulations focus on the most vulnerable populations in need of medical care and other services-those with serious or complex medical conditions. Caring for these highly vulnerable populations poses a number of challenges. The committee believes, however, that the current state of clinical and research literature does not adequately address all of the challenges and issues relevant to the identification and care of these patients.



Laughing at My Nightmare

Laughing at My Nightmare Author Shane Burcaw
ISBN-10 9781626720077
Release 2014-10-14
Pages 256
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"With acerbic wit & a hilarious voice, Shane Burcaw's YA memoir describes the challenges he faces as a 20-year-old with muscular atrophy. From awkward handshakes to trying to finding a girlfriend and everything in between"--