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The Drive at 35

The Drive at 35 Author Andy Lipman
ISBN-10 0983745692
Release 2012-01
Pages 240
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This is the inspiring account of Andy Lipman's life with cystic fibrosis and the candid story of a young man finding his way in the world, despite big challenges. Cystic fibrosis affects seventy thousand people worldwide. In the United States, thirty thousand people live with cystic fibrosis and each year several hundred die as a result. When I was born in the early seventies, life expectancy for those with CF was in the teens. It is Andy's declaration that everyone, including medical professionals who told him he could not live past the age of 25, was wrong. This is the story of a competitive person with a life-threatening disease-the story of a person with hopes and dreams, just like everyone else, who must also deal with extraordinary circumstances. Andy writes about how he has dealt with depression for most of his life and the negative effects it has had on his family and loved ones. His purpose in writing this is to raise awareness about cystic fibrosis and to help fund cystic fibrosis research.



Cystic Fibrosis

Cystic Fibrosis Author Petra Miller
ISBN-10 9781502609410
Release 2015-12-15
Pages 64
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Cystic Fibrosis is a fatal genetic condition that affects people physically and mentally every day. This book describes the disease and the genetic causes behind it, follows researchers on their path to scientific discovery, identifies people who have excelled despite the condition, and tracks the latest treatments and research aimed at helping those with the condition. Sidebars highlight medical breakthroughs and the people who made them.



The Power of Two

The Power of Two Author Isabel Stenzel Byrnes
ISBN-10 0826266045
Release 2007-10-01
Pages 312
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For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship between twins who share this life-threatening disease through adulthood. Isabel Stenzel Byrnes and Anabel Stenzel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins’ bicultural heritage—Japanese and German—influenced the way they coped with these challenges. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But they tell how, in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a crossroads in their lives: “We have an old life—one of growing up with chronic illness—and a new life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. The Power of Two is an honest and gripping portrayal of day-to-day health care, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. It conveys an important message to both popular and professional readers as it addresses key psychosocial issues in chronic illness throughout the sufferer’s lifespan and illuminates the human side of advances in biotechnology. Even as gene therapy and stem cell research increase the chances for eradicating CF, this stirring account portrays its effects on one family that refused to give up. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.



Alex

Alex Author Frank Deford
ISBN-10 9781504007337
Release 2015-02-24
Pages 141
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A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.



Living with Cystic Fibrosis

Living with Cystic Fibrosis Author Susan Heinrichs Gray
ISBN-10 156766105X
Release 2002-08-01
Pages 32
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Presents the causes, symptoms, and treatments of cystic fibrosis.



Teeth

Teeth Author Hannah Moskowitz
ISBN-10 9781442449473
Release 2013-01-01
Pages 288
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A gritty, romantic modern fairy tale from the author of Break and Gone, Gone, Gone. Be careful what you believe in. Rudy’s life is flipped upside-down when his family moves to a remote island in a last attempt to save his sick younger brother. With nothing to do but worry, Rudy sinks deeper and deeper into loneliness and lies awake at night listening to the screams of the ocean beneath his family’s rickety house. Then he meets Diana, who makes him wonder what he even knows about love, and Teeth, who makes him question what he knows about anything. Rudy can’t remember the last time he felt so connected to someone, but being friends with Teeth is more than a little bit complicated. He soon learns that Teeth has terrible secrets. Violent secrets. Secrets that will force Rudy to choose between his own happiness and his brother’s life.



Long Walk to Freedom

Long Walk to Freedom Author Nelson Mandela
ISBN-10 0759521042
Release 2008-03-11
Pages 576
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The book that inspired the major new motion picture Mandela: Long Walk to Freedom. Nelson Mandela is one of the great moral and political leaders of our time: an international hero whose lifelong dedication to the fight against racial oppression in South Africa won him the Nobel Peace Prize and the presidency of his country. Since his triumphant release in 1990 from more than a quarter-century of imprisonment, Mandela has been at the center of the most compelling and inspiring political drama in the world. As president of the African National Congress and head of South Africa's antiapartheid movement, he was instrumental in moving the nation toward multiracial government and majority rule. He is revered everywhere as a vital force in the fight for human rights and racial equality. LONG WALK TO FREEDOM is his moving and exhilarating autobiography, destined to take its place among the finest memoirs of history's greatest figures. Here for the first time, Nelson Rolihlahla Mandela tells the extraordinary story of his life--an epic of struggle, setback, renewed hope, and ultimate triumph.



Never Say Never A Life of Challenges

Never Say Never  A Life of Challenges Author Gary Klausner
ISBN-10 9781462664092
Release 2011-01-13
Pages 156
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Never Say Never: A Life of Challenges is a memoir by Gary Klausner, who at the age of ten years old was diagnosed with Cystic Fibrosis and is about the challenges he has encountered throughout his life. For the past thirty six years he has faced every challenge head on with his never say never attitude and has been an inspirational and motivational force to all who have met him. At the age of 33 Gary left his six-day-old twin boys and his wife, Robin, to move to North Carolina to be wait-listed for a double lung transplant at Duke University Hospital not knowing if he would ever see them again. Since receiving his double lung transplant in 1998 Gary's mission has been to spread the word about Cystic Fibrosis and Organ Donation. He has been featured on several television shows including: Bravo TV Channel Queer Eye for the Straight Guy,"" The Discovery Health Channel ""Beating the Odds"" and News 12 Long Island. In addition, he has been honored by several organizations including the Boomer Esiason Foundation, and Cystic Fibrosis Foundation for his courage and inspirational achievements.



100 Cases in Clinical Medicine Third Edition

100 Cases in Clinical Medicine  Third Edition Author P John Rees
ISBN-10 9781444174298
Release 2013-11-13
Pages 275
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Making speedy and appropriate clinical decisions and then choosing the best course of action is an essential skill for doctors. Exploring initial medical assessment, 100 Cases in Clinical Medicine presents 100 scenarios commonly seen by medical students and junior doctors in the emergency or outpatient department, on the ward, or in the community setting. Each case begins with a succinct summary of the patient's history, examination, and initial investigation. The text includes photographs where relevant and questions on the diagnosis and management of each case. The answers provide a detailed discussion on each topic, with further illustration where appropriate. Most of the cases included are common problems but the book also includes more unusual cases to illustrate specific points and to emphasize that rare things do present. The first 20 cases are arranged by systems; the next 80 are in random order because symptoms such as breathlessness and pain may relate to many different clinical problems in various systems. These true-to-life cases will teach students and junior doctors to recognize important clinical symptoms and signs and to develop the diagnostic and management skills needed for the cases they will encounter on the job.



The Spark of Life Electricity in the Human Body

The Spark of Life  Electricity in the Human Body Author Frances Ashcroft
ISBN-10 9780393089547
Release 2012-09-24
Pages 352
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“A gem that sparkles.”—William Bynum, Wall Street Journal What happens during a heart attack? Can someone really die of fright? What is death, anyway? How does electroshock treatment affect the brain? What is consciousness? The answers to these questions lie in the electrical signals constantly traveling through our bodies, driving our thoughts, our movements, and even the beating of our hearts. The history of how scientists discovered the role of electricity in the human body is a colorful one, filled with extraordinary personalities, fierce debates, and brilliant experiments. Moreover, present-day research on electricity and ion channels has created one of the most exciting fields in science, shedding light on conditions ranging from diabetes and allergies to cystic fibrosis, migraines, and male infertility. With inimitable wit and a clear, fresh voice, award-winning researcher Frances Ashcroft weaves together compelling real-life stories with the latest scientific findings, giving us a spectacular account of the body electric.



Principles of Regenerative Medicine

Principles of Regenerative Medicine Author Anthony Atala
ISBN-10 9780128098936
Release 2018-08-09
Pages 1454
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Principles of Regenerative Medicine, Third Edition, details the technologies and advances applied in recent years to strategies for healing and generating tissue. Contributions from a stellar cast of researchers cover the biological and molecular basis of regenerative medicine, highlighting stem cells, wound healing and cell and tissue development. Advances in cell and tissue therapy, including replacement of tissues and organs damaged by disease and previously untreatable conditions, such as diabetes, heart disease, liver disease and renal failure are also incorporated to provide a view to the future and framework for additional studies. Comprehensively covers the interdisciplinary field of regenerative medicine with contributions from leaders in tissue engineering, cell and developmental biology, biomaterials sciences, nanotechnology, physics, chemistry, bioengineering and surgery Includes new chapters devoted to iPS cells and other alternative sources for generating stem cells as written by the scientists who made the breakthroughs Edited by a world-renowned team to present a complete story of the development and promise of regenerative medicine



There Are No Alligators in Heaven

There Are No Alligators in Heaven Author Donna Codell
ISBN-10 0990854728
Release 2017-05-08
Pages 224
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Using Jennifer Hale's own writings and images as well as interviews with Jennifer's parents, Evan Michael Codell and Donna Codell, presents the life and experiences of Jennifer Hale and her family as Jennifer lived with cystic fibrosis.



Run Amy Run

Run  Amy  Run Author Beth Huffman
ISBN-10 0615552951
Release 2011-11-25
Pages 129
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Run Amy Run has been writing in one form or another for most of life. You can find so many inspiration from Run Amy Run also informative, and entertaining. Click DOWNLOAD or Read Online button to get full Run Amy Run book for free.



Beyond Breathing

Beyond Breathing Author Margarete Cassalina
ISBN-10 9781935278658
Release 2009-03
Pages 144
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Beyond Breathing is a story of a mother's loss of her 13 year old daughter, Jena, to Cystic Fibrosis, a fatal genetic disease. Her journey takes you from unfathomable heartache to love and understanding of life's realities.Through her journey she learns that life lessons come from her children and the beauty of living and the power of love. In the span of one year she learns to go from depression and dependency to inner strength and the realization that love never ends and that there are no coincidences. That she is beyond just breathing.



The Stones Applaud

The Stones Applaud Author Teresa Anne Mullin
ISBN-10 1577363639
Release 2007
Pages 309
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Teresa Mullin was diagnosed with cystic fibrosis at four years of age, but it wasn't until she was nine that she learned most children with the disease weren't expected to live to adulthood. What had been a nuisance soon became a force that molded her childhood, youth, and future. In ?The Stones Applaud, ? Mullin writes of absences from school, serving as a poster child, frequent hospitalizations, medical treatments, and most painful?the isolation that came with cystic fibrosis, an inherited condition that damages the lungs and affects the digestive system. With dry humor and sharp insights, Mullin describes her battles with the disease, teachers, fellow students, and even medical professionals who tried to hold her back from experiencing life. Alternately funny, frank, poignant, and gripping, ?The Stones Applaud? reveals the talented young writer's fierce determination to live, thrive, and persevere. Whether writing about the joy of being accepted to prep school and Harvard University, the tragedies of others? deaths, or the pain of a broken friendship, Mullin never resorts to sentimentality or courts pity. The result is a powerful self-portrait of a young woman who bravely faced death while living life, who fought for every breath and every experience, and who challenges others to carry on the fight for dignity and independence for those with chronic illness. Before she died, Mullin visited Ireland and witnessed cold Atlantic waves beat against the cliffs. Inevitably, the cliffs will not withstand the unrelenting waves, but still they persevere and only the stones applaud. Mullin selected that metaphor from a poem by Gerald Dawe as the title of her memoir. She saw herself and othersimpacted by cystic fibrosis as the stone cliffs, standing resolute and strong in the face of a battle they suspect they will never win.



Give Me One Wish

Give Me One Wish Author Jacquie Gordon
ISBN-10 0738862207
Release 2000-12-01
Pages 404
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This is the story of a remarkable mother and daughter and their love as they make sense of life and their relationship in the face of a deadly disease. Jacquie Gordon cannot cure her daughter Christine's cystic fibrosis, but she can teach her to follow life's gifts so that she grows up fearless and ready to discover her place in the world. In high school Chris comes into her own. Her wit and style hide her illness and turn ordinary moments into events. In her senior year, fearful that her illness makes her unappealing, she finds a love that will touch the heart of every reader. At graduation, she wins the Headmaster's Award for "educating the school in the most profound sense." Christine leads us on a funny, heartbreaking, exhilarating path: Through rock and roll from the Sex Pistols to U2 through slam dancing and Christian Fellowship through getting fake I.D.'s and saying her prayers through oxygen masks and The Rocky Horror Picture Show, through the Muppets and dyeing her hair purple, to singing with a band to catapulting herself onstage to kiss her favorite rock star. Defying the terror of her illness, she spends her life rejoicing. At college, eager for independence, illness forces her home in the very first semester. She returns to her mother's care, not as a resentful teenager, but as a beautiful and fiery young woman determined to share with her mother what she has learned of life. Chris had everything except one thing: good health. And in her familiar hospital room, with her family by her side, she lost everything to cystic fibrosis three weeks after she turned twenty-one. You will not be able to put down this enthralling book that gives us a rare and intimate chronicle of a teenage girl growing up in the 70's and 80's. Replete with passages from Christine's ten journals, Give Me One Wish tells the healing story of a beautiful girl who never stopped trying to live and who succeeds beyond all expectation. Readers of Give Me One Wish will never forget her rich journey and her wonderful victories. Listed among ALA's Best Books for Young Adults 1988. "This is a terrific book, which I recommend highly. We at the Muppets all loved Christine a beautiful and sensitive soul, a lover of life; but I never knew, until I read this book, just how brave and strong a fighter she was." Jim Henson, The Muppets "Christine was, at last, so alive, and that is the quality that her mother so vividly portrays in this lovely memoir." Frank Deford, author of Alex: The Life of a Child "This is a relentlessly realistic work about what it is like to live with and die from a chronic fatal illness. There is no pap, no sugar-coating; which is why it is a very good book for anyone who has the courage to face life and death squarely as we must if we are to be wholly human, and if we are to see those glimpses of glory which lies only beyond the terror. There are many beautiful things about this book." M. Scott Peck, M.D., author of The Road Less Traveled " This book has class. Gordon's style is elegant in its directness, with honesty and without sentimentality." The New York Times "This is a beautiful book about a mother and daughter sharing all the problems of life the normal everyday crises and an extraordinary battle against disease and growing together through them. It is for mothers and daughters, parents and teenagers everywhere." Elizabeth Forsythe Hailey, author of bestseller, A Woman of Independent Means "Christine's story is for all secondary students and adults. It carries a heavy emotional impact, but Christine is a person teens should know. Her spunk, her humor, her talent shine through Gordon's superb narration and collection of photographs. A MUST FOR ALL SECONDARY LIBRARIES." English Journal National Council of Teachers of English "An truly extraordinary book a story and a life which simply cannot be forgotten." Alice Hoffman, author of Illumination Night, Seventh Heaven, The River Ki



Popular Science

Popular Science Author
ISBN-10
Release 2005-09
Pages 136
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Popular Science gives our readers the information and tools to improve their technology and their world. The core belief that Popular Science and our readers share: The future is going to be better, and science and technology are the driving forces that will help make it better.